Advocacy

Policy Priorities
State Advocacy & NEBDAC
Federal Advocacy

What Is Advocacy?

Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.” Advocacy can take place in many different ways.

Advocacy is a key part of the New England Hemophilia Association’s mission. In 2016, the New England Bleeding Disorders Advocacy Coalition (NEBDAC) was formed to create a collaborative advocacy effort across all six states. NEHA serves as the direct contact and manager of the NEBDAC Advocacy Coordinator.

Virtual Advocacy Resources

During the COVID-19 pandemic, many of our in-person advocacy events were transitioned to a virtual setting. While these conditions limited us from meeting face-to-face, our advocacy continued. Watch a webinar, below, to learn more about being a virtual advocate.

Types of Advocacy

  • Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.
  • State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.
  • Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.
  • Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.

You Can Be An Effective Advocate!

To learn about the New England Bleeding Disorders Advocacy Coalition or our volunteer advocacy opportunities, click here.

If you have any questions about insurance or health care policy, or for more information about NEBDAC or any of our advocacy efforts, please email Joe Zamboni, NEBDAC’s Coordinator at: [email protected].

Supporters of our Advocacy Efforts

Presenting Sponsor

Presenting Sponsor

Champion Sponsor

Champion Sponsor

Champion Sponsor

Friend Sponsor

Friend Sponsor