VWD Retreat

 


A New Program For The VWD Community

We are thrilled to announce a new event focused solely on families living von Willebrand's Disease (VWD). Based on your feedback, this new program is a one day workshop led by professional facilitators and Hemophilia Treatment Center (HTC) partners to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. This event is intended for youth ages 13+ and their families; siblings are welcome to attend. A formal agenda will be sent out to registered attendees closer to the event.

Please note that registration will close on Monday, July 9th.



Frequently Asked Questions


Q. Do you have a room block?

Yes, we have a room block for Friday, July 27 and a smaller number of rooms for Saturday, July 28th at $109 per night. To book a room, please 860-409-6110 and reference the "New England Hemophilia" block. You must book a room by July 9, 2018.


Q. Who is this event open to?

This event is only open to adults and youth ages 13+ who have VWD or are parent or sibling of someone with VWD. There will be a teen track and an adult track. If your child is not 13 years old and would like to attend, please reach out Heather Case, NEHA's Program Director at: hcase@nehemophilia.org.


Q:  Is childcare available at this event?

There is no childcare available or youth track. Affected youth ages 13+ and their siblings aged 13+ are welcome to attend.


Q: Who can attend this event?

You must be a 2018 NEHA member to attend this event. Click here to become a 2018 member. Please note, if you are registered but can no longer attend, please notify us immediately. If a cancellation occurs within 72 hours of the event, you will be charged with a $30 per person fee.


Q. Does NEHA offer financial assistance?

Yes, if you are travel over 100 miles roundtrip, you are eligible for the $100 for 100 miles program. During the event, you can pick up a form and request support.


Q. How do I learn more about NEHA?

Go to www.newenglandhemophilia.org or call us at 781-326-7645.