NEHA Family Camp: Moultonborough, NH, June 27-30, 2018
Since 1992, NEHA has proudly offered Family Camp to the New England bleeding disorders community. Now in our 26th year, NEHA Family Camp is held each year at Geneva Point Conference Center in Moultonborough, NH, on Lake Winnipesaukee.
Campers rotate through a variety of activities including arts and crafts, woodshop, archery, field games, and visits to the waterfront. Adults are offered a variety of education sessions. Due to the unique medical condition of the campers, medical staff from the Hemophilia Treatment Centers volunteer to attend camp and provide support to the campers. Classes in self-infusion are taught by experts and the relaxed environment leads to many young people learning to infuse for the first time.
Since 2014, NEHA Family Camp increased by 93%, and now serves over 75 families (300+ individuals) from the bleeding disorders community in all six New England states and New York with support from four Hemophilia Treatment centers.
Young adults ages 16+ are encouraged to apply for a junior counselor (ages 16-17) and counselor role (18+). Counselor training begins one day prior to camp beginning.
Applications for NEHA Family Camp 2018 are now closed. Should you have questions or to be placed on the waitlist, contact Heather Case, Camp Director, at 781.326.7645 or email@example.com.
NEW: Murder Mystery Dinner: Dedham, MA, July 21, 2018
We are hosting our first annual Murder Mystery Dinner to bring together community members and supporters. This event will offer engagement to the bleeding disorder community that will raise awareness and funds for the New England bleeding community.
Registration for the Murder Mystery Dinner is open. To register, visit https://www.eventbrite.com/e/murder-mystery-dinner-tickets-45694273803.
NEW: von Willebrands Conference: Farmington, CT, July 28, 2018
For the first time in NEHA's history, we are hosting an event specifically for families and individuals affected by von Willebrands disease. This important and overdue event will offer an opportunities for education, support and advocacy. The event is open to youth ages 13+. There will not be a childcare or a youth track at this event. The teen track will focus on self-advocacy and leadership development. The adult track will include an opportunity to learn more about how to effectively manage vWD directly from HTC educators.
Registration for the vWD Retreat will open in May.
BLeaders Teen Retreat: Thompson Island, MA, August 6-7
Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc.
Attendance for our 2017 BLeaders teen retreat was 11 young adults. We are at new location in 2018, the Thompson Island Outward Bound program. This program takes places on Thompson Island, a harbor island in the Boston harbor. Registration for our 2018 BLeaders retreat will open in the summer of 2018.
Women's Retreat: Essex, MA, September 21–23, 2018
Each year, we host a women's retreat that brings together 40 females (ages 13+) with any type of a bleeding disorder, carriers, and caregivers living in New England. Newly opened to additional funders, the weekend features educational keynote sessions from New England Hemophilia Treatment Center (HTC) physicians, nurses, social workers, health and wellness workshops, breakout sessions, and much more! Last year, medical professionals from 5 HTCs presented at this retreat. We had over 40 women attend in 2017.
Registration for this event will open in early August.
Hispanic Heritage Month Symposium, Somerville, MA, September 28-29, 2018
Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2017, over 60 individuals attended our annual Hispanic Heritage symposium. The conference is filled with educational opportunities for community members to learn and connect with others. All educational sessions are presented in Spanish only.
Our Annual Hispanic Heritage Month Symposium begins with a dinner on Friday, September 28 and goes through 5 pm on Saturday, September 29, 2018. The event takes place in Somerville, MA. The entire symposium is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event is free and includes one hotel night (Friday, September 28) and all meals.
Registration for our 2018 Hispanic Heritage Month Event will open in mid-summer 2018.
Si usted está interesado en aprender más acerca de NEHA y habla español, por favor póngase en contacto con Heather, firstname.lastname@example.org o 781.326.7645.
Dads in Action Camping Adventure
NEHA was thrilled to offer a Dads in Action camping adventure with kids in 2017. This special event is intentionally planned to be the same weekend as NEHA's Women's retreat. While mom is at the retreat, dad can take the kids camping and have a fun filled time in Stowe, Vermont. Although this event is intended for Dads who are caregivers to child(ren) with a bleeding disorder, the event is open to any parent/caregiver-please contact Heather Case to discuss any unique situations.
This program included a team building/problem solving climbing event for multiple ages. There was a group infusion at the campground before the climbing event.
NEHA's 2018 Dads in Action Camping Adventure will be held September 21-23, 2018. Registration for this event will open in early August.
FallFest: Manchester, NH, November 3-4, 2018
NEHA hosts two large conferences for the New England Bleeding disorders community, the Consumer Medical Update (in the Spring) and FallFest. Last year's Fall Fest meeting in Hartford, CT saw almost 300 consumers! These conferences rotate between Southern New England (CT, RI and MA) and Northern New England (VT, NH and ME.) At these conferences, NEHA provides educational programming for all families and offers specific tracks for: adults, teenagers (13+), tweens (6-12 years old), and childcare (newborn-5 years old.) NEHA partners with the National Hemophilia Foundation (NHF), the Hemophilia Federation of America (HFA), the nine Hemophilia Treatment Centers in New England, and numerous industry partners to create the program. The conference was held over Halloween weekend- hence the costumes in the photo.
Registration for FallFest 2018 will open in August.
Holiday Party: December 2, Alnoba Center, Kensington, NH
The NEHA Holiday Party is annual tradition and is held on the first Sunday of December. Families have an opportunity to spend a lot of time with friends new and old. Not to mention a special visit from the North Pole!
Registration for the 2018 NEHA Holiday Party will open in October 2018.
Blood Brotherhood, Dads in Action, Moms in Action/Blood Sisterhood
NEHA is a proud participant in HFA programming. NEHA has 3 HFA supported program groups; The Blood Brotherhood, Moms in Action/Blood Sisterhood, and Dads in Action.Each event has social, wellness and educational components.
Our Moms in Action group started at Family Camp 2016. NEHA's Moms in Action/Blood Sisterhood plans to several events throughout the year specific to females in the bleeding disorder community and intended to create a safe, shared space to connect, engage, and learn. Please visit NEHA's Facebook page to see our most recent events.
The Dads in Action program is specifically designed to support Dads in the bleeding disorder community. NEHA has an active and engaged group of dads who meet regularly throughout the year to provide support, connect and have fun. Recent activities have included a Camp Out with dads and their children, F1 Racing and a Steaks and Sticks presentation.
NEHA's Blood Brotherhood chapter is members who are male, 18+ and older, live in New England and have a bleeding disorder. the Blood Brotherhood is a unique opportunity to connect with other males across the region who are also living with a bleeding disorder. Blood Brotherhood activities occur throughout the year and rotate between Southern NE and VT/NH/and Western MA.
To learn more about any of these programs, please contact Heather Case, NEHA Program Director at 781-326-7645 or email at email@example.com.