2017 Programs

In 2017, NEHA is excited to celebrate 60 years of being a regional health care non-profit. Below is a list of the many events we have planned for this year. This page gets updated regularly and registration opens at least 6–8 weeks before the event. If you have any questions, please contact us.

 

Consumer Medical Update: March 25, Portsmouth, NH

To recognize March as Bleeding Disorders Awareness Month, we will be holding an important one-day Consumer Medical Update in Portsmouth, NH on March 25, 2017.


The goals of this meeting are to provide consumers in the New England bleeding disorders community with the foundation and tools to discuss the potential treatments currently in clinical trials (subcutaneous injections and gene therapy), to have conversations around future insurance barriers to these treatments, and what the psychosocial implications may be to patients.

Please note: childcare will not be provided at this event and the content will be tailored for young adults (ages 18+) and adults. If your child is under the age of 18 and would like to attend the general sessions, please contact us at: info@newenglandhemophilia.org


 

HFA's Symposium: April 6–9, Providence, RI

We are proud to welcome the Hemophilia Federation of America's (HFA) Symposium to Providence, RI on April 6–9, 2017! As the host chapter of the event, we are thrilled to offer you two (2) paid hotel nights at no cost at the Omni Providence Hotel (a $350 value), when you become a 2017 NEHA member. Since there are a limited number of scholarships avaliable, please register early to ensure your spot.


REGISTER FOR HFA'S SYMPOSIUM

 

Couples' Retreat: April 29–30, Stowe, VT

This annual event includes a two-day workshop led by professional facilitators and therapists to provide couples with a bleeding disorder a chance to learn, network and ask questions in a more intimate setting. Max attendance for this event in 2017 is 20 couples (40 individuals.)


The 2017 Couples Retreat will be held at the Van Trapp Family Lodge in Stowe, VT on April 29-30, 2017.


REGISTER HERE


25th Anniversary of Family Camp: July 5–8, Moultonborough, NH

Since 1992, NEHA has proudly offered Family Camp to the New England bleeding disorders community.  Now in our 25th year, NEHA Family Camp is held each year at Geneva Point Conference Center in Moultonborough, NH, on Lake Winnipesaukee.  


Campers rotate through a variety of activities including arts and crafts, woodshop, archery, field games, and visits to the waterfront.  Adults are offered a variety of education sessions. Due to the unique medical condition of the campers, medical staff from the Hemophilia Treatment Centers volunteer to attend camp and provide support to the campers.  Classes in self-infusion are taught by experts and the relaxed environment leads to many young people learning to infuse for the first time.

 

Between 2014 and 2016, NEHA Family Camp increased by 30%, and now serves over 50 families (250+ individuals) from the bleeding disorders community in all six New England states and New York with support from four Hemophilia Treatment centers.  


Young adults ages 16+ are encouraged to apply for a junior counselor (ages 16-17) and counselor role (18+).  Counselor training begins one day prior to camp beginning.  

 

Family Camp 2017 will be held from July 5-8, 2017. Registration closed on March 10.  If you have any questions about NEHA Family Camp, please contact Heather Case, Camp Director, at 781.326.7645 or hcase@nehemophilia.org.  


REGISTER HERE


 

BLeaders Teen Retreat: August 9–10, Kensington, NH

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program will offer young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc.




Expected attendance for our 2017 BLeaders teen retreat is 15-20 teenagers.  The retreat will be held in August in New Hampshire. Registration will open in June for this great event!



Hispanic Heritage Month Symposium: September 16-17, Somerville, MA


Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2016, over 60 individuals attended our annual Hispanic Heritage symposium.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only.  


Our 4th Annual Hispanic Heritage Month Symposium is scheduled for Saturday, September 16- Sunday, September 17 in Somerville, MA.  The entire symposium is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event is free and includes one hotel night and all meals.  


Registration will be open eight weeks prior to event date.

 



Si usted está interesado en aprender más acerca de NEHA y habla español, por favor póngase en contacto con Heather, hcase@nehemophilia.org o 781.326.7645.  




Women's Retreat: September 21–23, Essex, MA

Each year, we host a women's retreat that brings together 40 females (ages 13+) with any type of a bleeding disorder, carriers, and caregivers living in New England.  Newly opened to additional funders, the weekend features educational keynote sessions from New England Hemophilia Treatment Center (HTC) physicians, nurses, social workers, health and wellness workshops, breakout sessions, and much more! Last year, medical professionals from 5 HTCs presented at this retreat.  Max attendance in 2017 is 40 women.

 

Plans for our next Women's Conference are underway for the Fall of 2017 which will be from September 21–23 at Essex Woods. Registration for this event will open in July.

 

FallFest: October 14–15, Hartford, CT

NEHA hosts two large conferences for the New England Bleeding disorders community called SpringFest and FallFest. Last year's Fall Fest meeting in Burlington, VT saw a 48% increase in attendance with over 250 consumers! These conferences rotate between Southern New England (CT, RI and MA) and Northern New England (VT, NH and ME.) At these conferences, NEHA provides educational programming for all families and offers specific tracks for: adults, teenagers (13+), tweens (6-12 years old), and childcare (newborn-5 years old.)  NEHA partners with the National Hemophilia Foundation (NHF), the Hemophilia Federation of America (HFA), the nine Hemophilia Treatment Centers in New England, and numerous industry partners to create the program.


 FallFest 2017 will be October 14–15, 2017 in Hartford, CT! Registration will open in the early August.  


 

Holiday Party: December 3, Sturbridge, MA

The NEHA Holiday Party is annual tradition and is held on the first Sunday of December.  Our 2017 event took place at Olde Sturbridge Village in Sturbridge, MA.  Families ate a hearty New England lunch, had opportunity to take photos with families and friends in a photo booth provided by Picture It Photo Booth and spent a lot of time with friends new and old. Not to mention a special visit from the North Pole! After Santa's visit, families were able to tour Old Sturbridge Village to see the holiday decorations and experience the festive holiday environment! Registration for our 2017 party will open in late October.


Blood Brotherhood, Dads in Action, Moms in Action/Blood Sisterhood

NEHA is a proud participant in HFA programming. NEHA has 3 HFA supported program groups; The Blood Brotherhood, Moms in Action/Blood Sisterhood, and Dads in Action.Each event has social, wellness and educational components.


Our Moms in Action group started at Family Camp 2016.  NEHA's Moms in Action/Blood Sisterhood plans to several events throughout the year specific to females in the bleeding disorder community and intended to create a safe, shared space to connect, engage, and learn.  Please visit NEHA's Facebook page to see our most recent events.




The Dads in Action program is specifically designed to support Dads in the bleeding disorder community. NEHA has an active and engaged group of dads who meet regularly throughout the year to provide support, connect and have fun.   Recent activities have included a Camp Out with dads and their children, F1 Racing and a Steaks and Sticks presentation.




NEHA's Blood Brotherhood chapter is members who are male, 18+ and older, live in New England and have a bleeding disorder.  the Blood Brotherhood is a unique opportunity to connect with other males across the region who are also living with a bleeding disorder.  Blood Brotherhood activities occur throughout the year and rotate between Southern NE and VT/NH/and Western MA.




To learn more about any of these programs, please contact Heather Case, NEHA Program Director at 781-326-7645 or email at hcase@nehemophilia.org.


 

The Hole In the Wall Gang Camp

Founded in 1988 by Paul Newman, The Hole in the Wall Gang Camp in Ashford, Connecticut is a nonprofit, residential summer camp and year-round center serving children and their families coping with cancer and other serious illnesses and conditions. Through Camp programs, year-round outreach to hospitals and clinics, and ongoing services for children, families and caregivers, the Camp serves more than 15,000 annually.  All of  the Camp's services are provided free of charge.  NEHA supports the Camp by promoting specific sessions that are created for children with bleeding disorders and other chronic illnesses. We also promote their Hemophilia Family Weekend in the Fall.  For more information, please call the Camp at 860-429-3444 or check out their website by clicking HERE