Privacy Policy

The New England Hemophilia Association (NEHA) respects the privacy of every individual who visits our Web site,  This notice explains our online information practices.  By visiting the Web sites, you accept the practices described in this notice.


Information Collection and Use
NEHA is the sole owner of the information collected on this site. We will not sell or share your information to others outside of NEHA.

NEHA may collect data from visitors to the site via various forms such as membership or donations.  Completion of any of these forms is optional. The membership information that is collected via the proper form is entered into the NEHA database. The new member will be placed on a list to receive NEHA email communications as well as occasional communications by regular mail. Visitors who do not wish to receive communications from NEHA have the opportunity to opt out at any time. Form completion also allows visitors to make donations online to NEHA. 


At no time is the personal information collected from a visitor shared with any individual, company, sponsor, vendor, organization, or other entity outside of NEHA.


NEHA’s Website include links to other online resources.  NEHA is not responsible for the privacy practices or information on other sites. We encourage our visitors to read the privacy statements of every Web site they visit.


Updating Personal Information
Questions or problems concerning personal information updates can be addressed to NEHA by sending email to or calling 781-326-7645.


Notification of Changes
Any changes to this privacy policy will be posted to the homepage of our Website.