Position Description: Advocacy Coordinator

The New England Hemophilia Association (NEHA) seeks an Advocacy Coordinator to lead our legislative and advocacy efforts in all six of the New England states. As part of a newly developed New England Advocacy Coalition, this position will also work with the staff from the Hemophilia Alliance of Maine (HAM) and Connecticut Hemophilia Society (CHS). This position is part-time and will be about 10-15 hours per week from NEHA's Dedham, MA office. You must be willing to travel.

About NEHA

Founded in 1957, the New England Hemophilia Association (NEHA) is a 501(c)3 organization that provides programs and services to the bleeding disorders community across New England. NEHA’s mission is to improve the quality of life for persons with bleeding disorders and their families through education, support, and advocacy. NEHA serves the states of Maine (ME), New Hampshire (NH), Vermont (VT), Rhode Island (RI), Massachusetts (MA), and Connecticut (CT).

Education and Experience

  • Minimum BA/BS degree, preferably in political science

  • 2–4 years related experience of administrative support and project management

  • Highly organized with strong project management skills

  • Skilled at prioritizing and juggling competing needs

  • Excellent interpersonal skills and collaborative work style

  • Outstanding oral communication skills with the ability to present information clearly

  • Skilled at writing clearly and concisely in multiple formats

  • Developing and implementing strategy for advancing policy goals with key decision-makers

  • Confident in use of Microsoft Office applications, database management, Adobe document, and social media applications.

  • Experience in coalition-building and working in a team environment

  • Evidenced experience working with and managing groups of people.

  • Ability to use data in shaping policy messages

Roles and Responsibilities

  • Manages the New England Bleeding Disorders Advocacy Coalition

  • Provides staff support to NEHA, Hemophilia Alliance of Maine (HAM), and Connecticut Hemophilia Society’s (CHS) advocacy efforts

  • Oversees the ambassadors on the New England Bleeding Disorders Advocacy Coalition

  • Updates and maintains the advocacy pages on NEHA, HAM, and CHS’ websites

  • Organizes (3) state based legislative days in 2017

  • Manages all advocacy functions include logistics, scheduling, materials management, agenda development, reports and correspondence

  • Other duties related to the coalition, as assigned


This is a part-time position. Compensation is commensurate with experience.

Application Deadline

March 12, 2017

Application Process

Email resume, cover letter, three professional references, and a writing sample to:

Rich Pezzillo, NEHA Executive Director: rpezzillo@nehemophilia.org

Subject: Advocacy Coordinator Position