Numerous clinical trials are currently underway as possible breakthrough treatments for bleeding disorders. In November 2017, the FDA approved the first subcutaneous injection to treat hemophilia A and inhibitors -- marking a significant milestone in treatment.
To recognize March as Bleeding Disorders Awareness Month and to help you understand what these potential medical advancements may mean for your family and you, we are proud to host our 2nd Annual Consumer Medical Symposium in Southbridge, MA on Saturday, March 24, 2018. There will be information presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders.
The goals of this meeting are to provide consumers in the New England bleeding disorders community with the foundation and tools to discuss the current treatments and potential treatments in clinical trials (subcutaneous injections and gene therapy), to have conversations around future insurance barriers to these treatments, and to begin to process what the psycho-social implications may be to patients. Dr. Stacy Croteau, Associate Director at the Boston Hemophilia Center, is chairing this event and working with other providers at New England Hemophilia Treatment Centers to present this important information in a way you can understand. Please note that registration closes on Friday, March 9.
Frequently Asked Questions:
Q. Is this Medical Update replacing SpringFest?
Yes. Based on the community response to the Consumer Medical Update in 2017, we have altered our spring event to be a medically focused event to provide community members an opportunity to learn about the emerging therapies and shifting landscape.
Q. Do you have a room block?
Yes. We have a room block at the Southbridge Hotel and Conference Center for Friday, March 23 and Saturday, March 24 for only $109 a night. To reserve a room please call the Southbridge Hotel and Conference Center at 508-765-8000 and mention "New England Hemophilia Association."
Q. How much does it cost?
Registration is free for NEHA members, and only $10 a person for any non-member. Click here to become a 2018 member. Please note, if you are registered but can no longer attend, please notify us immediately. If a cancellation occurs within 72 hours of the event, you will be charged with a $30 fee.
Q. Does NEHA offer financial assistance?
Yes. If you are need of financial assistance, we can with help travel costs to and from the conference through our $100 for 100 miles program. A $100 lodging subsidy can be offered to anyone traveling more than 100 miles roundtrip to Southbridge. You must reserve and pay for your hotel room(s), and then provide NEHA with a receipt and proof of the 100 miles driven. A check for $100 will be mailed out after the event.
Q. Will there be childcare or a young track?
No. Childcare will not be provided at this event and the content will be tailored for teenagers (ages 13+) and adults. If your teenager/child is under the age of 13 and would like to attend this event, please contact us at: email@example.com.