Advocacy | New England Hemophilia Association

What Is Advocacy?

Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.” Advocacy can take place in many different ways.

Advocacy is a key part of the New England Hemophilia Association’s mission. In 2016, the New England Bleeding Disorders Advocacy Coalition (NEBDAC) was formed to create a collaborative advocacy effort across all six states. NEHA serves as the direct contact and manager of the NEBDAC Advocacy Coordinator.

Virtual Advocacy Resources

As a result of the COVID-19 public health emergency, many of our in-person advocacy events were transitioned to a virtual setting. While these current conditions limited us from meeting face-to-face, our advocacy work must continue.

Webinar: Connecting With Your Elected Officials. Watch the webinar here.

Types of Advocacy

Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.
State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.
Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.
Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.