About Advocacy

Advocacy is a key part of the New England Hemophilia Association’s mission. The New England Bleeding Disorders Advocacy Coalition was formed in October 2016. Over the coming weeks you will learn more about this important group and how you can get involved with advocacy efforts.

Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.”  There are many types of advocacy, including:


Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.

State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.

Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.

Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.



  • Communicate with decision makers via letters, email, telephone calls, and personal visits.
  • Enlist the local media to tell your story and write articles/editorials supporting our cause.
  • Create coalitions to work on behalf of our cause.
  • Learn more about the issues facing our community.


For more information, contact Rich Pezzillo at: RPezzillo@nehemophilia.org

You can also follow NEHA Advocacy on Facebook and Twitter.